Top of Mind is your source for updates, news, and commentary on The Change Foundation’s projects and partnerships, as well as the patient and caregiver experience in Ontario.



We’re closing out 2016 more energized with our work than ever before! In this issue of Top of Mind, we focus on some major insights and innovations we saw on a recent visit to some leading caregiver support organizations in the UK, including Carers in Herts and John’s Campaign. Foundation President and CEO Cathy Fooks also reflects on the substantial progress being made in the UK in light of the especially difficult time caregivers may face during the holiday period.  We also take time to share the significance of our latest report on long-term care resident councils and family councils–an important patient engagement model. Lastly, from everyone at The Change Foundation, we extend our warmest wishes for the holiday season and a great start to 2017.

Access the Winter 2016 issue below.

See current and previous articles below:

Across the pond: New reflections from the UK

The start of the winter season always brings tidings of joy, peace, and for some, relaxation. For many family caregivers, however, this can be start of an even more stressful period. From providing emotional support to performing medical tasks, we know caregivers take on a host of roles and responsibilities, many of who also hold More >

Enhancing Care, Enhancing Life: Looking closer at Long-Term Care Councils

Stephanie Hylmar  In Ontario, more than 620 long-term care homes provide round-the-clock nursing, medical, social and personal care for more than 78,000 residents at any one time. In recent years, long-term care homes have been increasing their efforts to work collaboratively with system partners, staff, residents and families to enhance the quality of care and More >

Insight and innovation in the UK

Christa Haanstra, Executive Lead, Strategic Communications  It was on the train back to London from Hertfordshire when the enormity of just how much leadership, collaboration and focus is needed to make positive changes for caregivers in Ontario registered. Throughout my work with The Change Foundation, I’ve been lucky to be a part of numerous caregiver More >

“Stay With Me”—John’s Campaign revolutionizing hospital care in the UK

Catherine Monk-Saigal Imagine a health care world where the term “visiting hours” doesn’t exist and caregivers or family members of people with dementia are invited to stay with their loved one in hospital. Open visiting hours may still be a work in progress in Ontario, but thanks to a small but very powerful grassroots movement, More >

Changing CARE—Our time for action

We listened. We heard. Now it’s time for action. That’s been our mantra for just over a month now with the launch of our new funding initiative, Changing CARE. We’ve done the legwork, and we’re ready to take action in Ontario’s health and community care sectors. This past week was our deadline for Expression of More >

My whole experience: Olivia’s young carer journey

Catherine Monk-Saigal As long as she can remember Olivia Wyatt has been a caregiver to those around her. She didn’t grow into it and it didn’t come naturally—it was just always part of her. “It’s hard to remember it coming at all,” says Olivia, 17, “It was just always there. Caregiving was my whole experience.” More >

Action through policy: Legislation supporting family caregivers

Cayla Baarda Over the last few years, governments around the world have started taking action to improve legislative and policy supports for caregivers. As part of our research and discovery work, The Change Foundation took a closer look at some of the recent changes in legislation and policy worldwide. Although we found promising policy developments More >

Partnering with family caregivers essential to Changing CARE

Cathy Fooks, President and CEO In August, we announced details on our new funding initiative, Changing CARE. Since then, we’ve seen an overwhelming response from every corner of the Ontario health care environment. This is evidenced by the nearly 400 participants in our Changing CARE webinars throughout August and September, and the 70 Expressions of More >

Strong Engagement, Strong Research: The Keys to Our Approach

Just as we welcome a new season and warm weather returns, we at The Change Foundation (TCF) are feeling very energized as we move into new phases of our work. Doing a deep dive into family caregiver issues through grassroots engagement and research has underscored for us just how imperative it is that we continue More >

Ontario’s health providers bring insight to the other side of caregiving

Health care is often grounded in human interactions, chiefly between the health provider and the patient and in some cases the family caregiver. Under its strategic plan, The Change Foundation (TCF) has already worked hard to acutely listen to the experiences of family caregivers in the health care system through the first phase of The Caring Experience. More >