This presentation speaks to the evolution of the Foundation’s engagement activities, positioning PANORAMA as an indication of the importance placed on hearing and heeding the voices and views of patients and caregivers. The slides explain how the Foundation plans to engage with panel members, on what issues, and to what end. It sets out clear engagement principles by which the Foundation will abide, and it provides examples of how the panel’s contributions may be used– to guide the Foundation’s decision making, for example, or to present, along with other evidence and analysis, patient and caregiver perspectives that would be otherwise absent.

Read the presentation slides
(PDF – 8 pages – 190 KB)