Addressing Issues of Privacy and Consent

Our public engagement family caregivers, and health and community care providers across Ontario, found a gap in knowledge and understanding of how privacy and consent rules apply to caregivers.

Caregivers expressed concern over the lack of access to information to support the person they are caring for, while providers noted they weren’t sure whether or when they are allowed to share personal health information with family caregivers.  Furthermore, issues related to privacy and consent are further complicated when it comes to patients with mental health diagnoses and addictions.

Based on the needs of both caregivers and  providers, these resources aim to set the record straight about how Ontario’s privacy and consent rules apply to them.

Explore additional resources developed by The Change Foundation on Making Privacy and Consent Rules Work for Family Caregivers.


Do #caregivers get enough information and support when it comes to providing physical assistance to the care receiver? Learn what survey respondents said and create your own data visualizations: