Blog: Crystal Chin On Moving From Pediatric to Adult CareDecember 13, 2013
PANORAMA panelist Crystal Chin, 25, has spastic diplegia cerebral palsy. Thanks to medical advances, she is part of a trailblazing generation of stronger, healthier CP patients. In this video blog post, Crystal describes her frustrating transition, at 18, from Toronto’s SickKids and Holland Bloorview to adult care. She says the larger system lacked the expertise CP patients needed. In one painful interaction, a specialist told her, “I don’t know about your condition, and I don’t do ‘chairs.’” This, she says, was the first of many experiences that showed a fundamental disconnect between the two systems. She joined PANORAMA to make it easier for others who will follow. Crystal was interviewed at the panel’s October 4-6 face-to-face meeting.