Blog

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Integrating the caregiver voice: Reflections on the IFIC Conference

In May 2018, Carole Ann Alloway, a family caregiver, and I partnered to develop and present a keynote address at the International Foundation for Integrated Care (IFIC) annual conference in Utrecht, The Netherlands. A few months after our presentation I asked Carole Ann to reflect on her experience.

Recipes for Change

Just as there are many ways to roast a chicken, whip together a savory pesto, or bake a chocolate cake, there are many ways to go about creating meaningful change at a system, organizational, provider, patient and family caregiver level.

Revisiting privacy and consent, and making changes along the way

We first took on the issue of Ontario’s privacy and consent rules for caregivers in our 2017 report–Making Privacy and Consent Rules Work For Family Caregivers–after hearing repeatedly that privacy and consent is a barrier faced by many of Ontario’s family caregivers, and is too often used as a crutch for the lack of engagement with family caregivers.

Changing CARE: Success built on a strong foundation

It’s hard to believe that it’s been a year since the four Changing CARE teams launched their innovative, caregiver-focused projects. 

One year, 15 cross-cutting working group sessions, 17 bi-weekly project managers meetings, and numerous steering committee meetings, to be more precise. Most impressively, across the four teams, more than 650 caregivers have participated, informed and partnered on the change they’d like to see.

WHAT’S BEING SAID

How do Ontario’s caregivers spend their #caregiving time? Find out in our latest report, Spotlight on Caregivers in Ontario – the first report of its kind in our province: bit.ly/2zRU6Jf #onhealth pic.twitter.com/OySgS1WRrV