When The Change Foundation embarked on our engagement with family caregivers and health and community care providers in 2015, our goal was to better understand the caregiver experience — particularly in their interactions with providers.
Back in 2015, when we first waded into the unknown waters of the caregiver experience, we weren’t sure what we were getting into. But what we did know was that The Change Foundation, as an independent and unbiased organization, was uniquely placed to explore this issue with both caregivers themselves and the providers who intersect with them in Ontario’s health and community care system. So, while the path forward wasn’t exactly clear, we were confident it was the right time and opportunity for us to lead this necessary provincial conversation.
There’s broad agreement that integrated healthcare serves patients better, eases the burden on caregivers and improves system accountability and efficiency. There are excellent examples of it in many countries and multiple efforts to create it here in Canada. Yet progress toward it remains frustratingly slow.
Upon my arrival, I was tasked with creating a comprehensive list of the programs and services that exist in Ontario that support young caregivers. This inventory, which we hope will help guide young carers, their families and healthcare providers, is nearly complete, and we hope to have it released in November.
Here are some of the things I learned through the process of building this resource and speaking with leading organizations across Ontario:
I am pleased to announce that Jodeme Goldhar, The Change Foundation’s Executive Lead of Strategy and Innovation, has been named a Senior Associate of the International Foundation for Integrated Care (IFIC).
In July, Carers UK released their annual State of Caring report. As I read through the report, I couldn’t help but notice the similarities in experiences.
In 2015, when we researched and wrote Should Money Come into It, two years later, we’re seeing renewed interest in this report.
As Ontario’s own caregiver organization comes closer to becoming reality, it’s more important than ever to learn from those who have blazed the trails.
The Change Foundation’s response to Kielburger article in the Huffington Post, “Forced to Grow Up Too Fast, Canada’s Young Carers Face Trauma,” shining a light on young carers.
The Change Foundation participated in the International Conference for Integrated Care, to discuss integrated care and delivering change that matters.