Family Caregivers

A Profile of Family Caregivers in Ontario

Over the last decade, health care in Ontario has increasingly become more community- and home-based. However, even though options exist for individuals to manage their own care at home, a family member or friend is also likely acting as caregiver throughout the health care journey. A Profile of Family Caregivers in Ontario, an in-depth review More >

Watch Hot Talks on Health with Heléna Herklots

On April 27, 2016, Ontario policy makers, health professionals, family caregivers, and patients met to hear Heléna Herklots, Chief Executive of CarersUK speak on the development of supportive policy for caregivers in the United Kingdom and what Ontario can learn from the UK experience. Family caregiver and author Katherine Arnup, PhD, also addressed those in More >

Shedding New Light: One Caregiver’s journey

In March 2015, The Change Foundation formally released Out of the Shadows and Into the Circle, its 2015-2020 strategic plan focused on improving the experiences of family caregivers in the Ontario health care system and their interactions with health providers. The first year of the strategic plan outlined a comprehensive period of research into the More >

Called Into Action: Katherine Arnup’s Caregiving Journey

For author and academic Katherine Arnup, her journey as a family caregiver started with a promise to her sister Carol. The promise had been made in 1990, after Katherine’s mother, her family’s main caregiver and support person, suffered a debilitating brain aneurism. “She had always been the caregiver.  You always knew, even as an adult, More >

Looking Back and Looking Forward: The Caring Experience

Genevieve Obarski, Executive Lead Program Implementation & Catherine Monk-Saigal, Program Associate As many of you know, The Change Foundation (TCF) and the Ontario Caregiver Coalition (OCC) spent much of January and February of this year travelling across the province to hear directly from family caregivers for The Caring Experience project. From Thunder Bay to London to More >

Q&A: Michelle Lewis, The Powerhouse Project

If our work through The Caring Experience project has shown anything, it’s that no one family caregiver journey is the same. Some journeys can last years, others a matter of months, all with varying intensities. However, one type of caregiving experience that is often invisible is that of young carers – children and young adults More >

Caregiver Insight Invaluable

The first year of a new strategic plan is always eye-opening, especially when you start off with a new vision and focus, as we did. Through our burgeoning engagement with family caregivers, we’ve been able to gain some initial, yet profound, insight into the issues family caregivers face when they interact with Ontario’s health and More >

Sharing Differenct Experiences Brings All Caregivers Together

Genevieve Obarski, Executive Lead, Program Implementation, The Change Foundation Lisa Levin, Chair, Ontario Caregiver Coalition Though the Family Caregiver Day Act may be more symbolic than anything, it is another signal among many that the roles and responsibilities involved with caregiving are gaining increasing recognition.On November 5th, an important step in recognizing the role of More >


The project leads for the Cultivating Change Changing CARE team share their insights and experience on co-design. To hear more from the team and the others, register for Hot Talks on Health on January 28, 2019: #TCFHotTalks #ChangingCARE