Patient Engagement

Strategic Plan 2010-2013: Summary

A summary of The Change Foundation’s 2010-2013 Strategic Plan: Hearing the Stories, Changing the Story. It outlines our key intentions over the next three years. We plan to: Listen and learn. We will learn from the experience of individuals and caregivers at key transition points in the system and over time. Incubate and innovate. We More >

Environmental Scan: Companion to the Change Foundation 2010-2013 Strategic Plan

Beginning in the summer of 2009, The Change Foundation began researching trends and activities in person-centred care, integrated care for patients, quality and innovation in the healthcare system, and equity and population health. Compiled in this environmental scan, the results of our research serve as a companion piece to our 2010-2013 Strategic Plan: Hearing the More >

Engaging Communities in Healthcare Change in Ontario: Mission Impossible?

A companion to the summary report from the March 2009 invitational symposium and workshop, Community Engagement & the LHINs: Truth & Consequences. Our commentary draws out the policy issues and implications emerging from what we heard and pulls out salient suggestions on how to support health service providers and the LHINs in enabling informed citizen More >

Community Engagement & the LHINs: Truth & Consequences – Summary Report

A summary of presentations and discussion at The Change Foundation’s March 2009 symposium and workshop help in partnership with Ontario’s Local Health Integration Networks (LHINs) to explore enablers and barriers to community engagement in healthcare change. This summary also shares the results of real-time voting at the symposium on such critical questions as the priorities More >

Who is the Puzzle Maker?

“You’re sent for more tests, you’re adding more doctors or specialists … and then you really sit back and you have to think to yourself from time-to-time, ‘Well, who is the puzzle maker? Who’s getting all these pieces and putting them together?’” — Carmen, patient and caregiver in Toronto Through snapshots of patient and caregiver More >

Public Expectation and Patient Experience of Integration Of Healthcare

The Change Foundation commissioned this literature review to inform our first health integration report, Who Is the Puzzle Maker? Researchers reviewed 53 international qualitative studies to report on the perceptions and expectations of patients and their families with respect to ease of navigation through healthcare and related systems. The studies focus on key experiences of More >

Exploring Patient and Caregiver Perspectives On Integration in Ontario Healthcare

“I think that’s the weakest link in the system … dealing with and getting parents into proper good care … there’s not enough information given to the children.” A summary of the focus-group research exploring patient and caregiver experiences, recommendations and perspectives on healthcare integration in Ontario. This research formed the basis of The Change More >


The Changing CARE teams with the help of additional experts co-designed surveys to probe the experience of caregivers and the experience of providers. Take a look and adapt the survey and questions at your organization: