Patient/Family Advisory Councils in Ontario Hospitals – At Work, In Play

“We’re making a culture change here, of trying to engage our patients more in decision making and moving away from advising” (Patient/Family Advisory Councils staff interview).

This report investigates the evolving function and best practices of Ontario’s hospital-based Patient/Family Advisory Councils (PFACs): one mechanism some hospitals are using – among other approaches – to advance patient/family engagement and patient-centred care.

This 3-part preliminary report aims to guide, connect and inspire by presenting thematic findings with examples of challenges and successes (part 1); quantitative data (part 2); and listings of PFAC initiatives, with contacts (part 3). The Foundation interviewed patients, family and staff from 29 hospitals about the functioning and impact of their councils.

Hospitals early in their PFAC journey can learn from those ahead of them. In future, we hope to expand our review beyond hospitals, reporting on PFACs and related bodies in other healthcare sectors.

Read the reports: Part 1 (Emerging Themes), Part 2 (Data Tables), Part 3 (Examples: What Councils Changed).

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WHAT’S BEING SAID

Stephane is a young caregiver who assists with caring for his younger brother. Don has been caring for his wife since her diagnosis with early onset Alzheimer’s 5 years ago. Hear from Stephane & Don on what their #caregiving experiences have been like: bit.ly/2VuxJCK pic.twitter.com/FfZTG9IqkE