Spotlight on Carole Ann

Carole Ann has been the primary caregiver for her husband since complications from surgery caused his health to significantly deteriorate. Over the past eight years, Carole Ann has struggled to find supports. Caregiving has been isolating. Carole Ann is now using her experience to advocate for more information, training and resources for caregivers across the province.

According to the survey, when caregivers need help, they turn to the internet and their friends and family long before looking to the healthcare system for help. Although support services exist for caregivers, they are hard to find.

 

More Support Needed

In Canada, family caregivers provide about three-quarters of all patient care. Caregivers make an enormous impact in the lives of many and need more support.

  • Sixty-four per cent of caregivers who needed information on providing physical support received it. Only 37% received actual hands-on training.
  • Fifty-three per cent received information on emotionally supporting their family member but only 43% received information to help support themselves emotionally.
  • Fifty-seven per cent of those who needed information on how to access financial support (through special agencies, government agencies, tax credits) did not receive information.
  • Forty-five per cent of caregivers say cost was the biggest barrier to getting additional support, followed by 32% who said it was lack of information.

Information and Support infographic

Information and Support infographic

Information and Support infographic

64%

of caregivers who needed information on providing physical support received it.

53%

of caregivers received information on emotionally supporting their family member.

Spotlight on Caregivers 2018

To better understand the experience of family caregivers in Ontario, we asked 800 caregivers questions about their role within the healthcare system, the type of tasks they are engaged in, the time and financial commitment required, and the impact caregiving as had on their lives.

Please read the Spotlight on Caregivers report to better understand the experience, profile and needs of family caregivers in Ontario.

LEARN MORE ABOUT INFORMATION AND SUPPORT THROUGH DATA

Learn more about how caregivers like Carole Ann perceive access to information and support through our survey data.

Click on the topics to explore data and build your own data visualization page that explores how caregivers access information and support.

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Explore the tools and resources we’ve created for caregivers and healthcare professionals

WHAT’S BEING SAID

The project leads for the Cultivating Change Changing CARE team share their insights and experience on co-design. To hear more from the team and the others, register for Hot Talks on Health on January 28, 2019: bit.ly/2EuqQNC #TCFHotTalks #ChangingCARE pic.twitter.com/cCm9NbG6vl