Spotlight on Emily

Emily is a young caregiver who takes care of her mother who has dementia. Her father is the primary caregiver; however, Emily travels to and from university on the weekends to care for her mother. She brings her mother to medical appointments and communicates with the healthcare team on behalf of her mother and family. She often finds it challenging working with the broader healthcare team as they don’t necessarily have the knowledge or training to handle a person with her mother’s condition.

According to the survey, young carers (ages 16 to 24) play an active role as caregivers. Young carers tend to downplay their role, are less likely to consider themselves a caregiver, and often don’t realize they are an important member of the healthcare team.

 

Role on the Healthcare Team

Many caregivers see themselves as an important member of the healthcare team. They feel they are the eyes, ears, and voice for the person they are caring for.

  • Forty-five per cent of caregivers feel they are important members of the healthcare team and 17% see themselves as the most important member.
  • Sixty per cent of caregivers see themselves as fully or partially responsible for organizing the other members of the healthcare team. Fifty-four per cent are overwhelmed by this task.
  • Seventy-five per cent of caregivers wish there was somewhere they could go for advice.
  • Transitioning from one place to another within the healthcare system is easier for caregivers than transitions from a healthcare facility to home (without home care) or from home to a health care facility.
  • Fifty-one per cent to 54% of caregivers find transitioning to or from a healthcare facility and home to be difficult.

Member of the Healthcare Team infographic

Member of the Healthcare Team infographic

45%

of caregivers feel they are important members of the healthcare team.

75%

of caregivers wish there was somewhere they could go for advice.

Spotlight on Caregivers 2018

To better understand the experience of family caregivers in Ontario, we asked 800 caregivers questions about their role within the healthcare system, the type of tasks they are engaged in, the time and financial commitment required, and the impact caregiving as had on their lives.

Please read the Spotlight on Caregivers report to better understand the experience, profile and needs of family caregivers in Ontario.

LEARN MORE ABOUT HOW CAREGIVERS SEE THEMSELVES AS MEMBERS OF THE HEALTHCARE TEAM THROUGH DATA

Learn more about how caregivers like Emily perceive themselves as members of the healthcare team through our survey data.

Click on the topics to explore data and build your own data visualization page that explores how caregivers see themselves as members of the healthcare team.

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WHAT’S BEING SAID

Where do #caregivers go for information and supports? We gained insights from our survey with 800 caregivers for the Spotlight on Ontario's Caregivers however we wanted to hear from our Caregiver Advisory Panel members as well. Check out what they said: bit.ly/2KJpOOm pic.twitter.com/WJG3ehZI0X