The Change Foundation’s Journey into the World of Patient Experience

Download Journey into the World of Patient Experience

In The Change Foundation’s Journey Into the World of Patient Experience, CEO Cathy Fooks provides high-level reflections on our 2010–2013 strategic journey, focusing on the lived experiences of patients and caregivers to drive system change. She says, “We decided we’d better listen to patients – maybe it would change how we saw the world of Ontario healthcare. We did listen. And it did.”

Our 2011 Loud and Clear consultations crystallized the difficulties seniors with chronic conditions have encountered in navigating the system. Fooks’s reflections outline how those consultations and subsequent research, policy analysis and patient engagement work led us to develop two signature projects, launched in 2012: Northumberland PATH and PANORAMA.

Tagged in: patient experience, Ontario health, patient engagement, Cathy Fooks, PANORAMA, PATH

“It is such a positive thing to have an orientation -where are things in the hospital, where can I find a tooth brush, the bank?” – Fabiana, Family Caregiver Hear from other #caregivers in our Wishlist videos: bit.ly/2tb3KDK pic.twitter.com/14pQRWHCnx

Only 47% of #caregivers received information on emotionally supporting their family member or friend. Read the Spotlight on Ontario’s Caregivers to learn more about the information and support needs of family caregivers: bit.ly/2QOu1RG pic.twitter.com/LlZ1aD08IE

DYK that 62% of young carers prefer to approach friends and family first for information followed by 57% turning to the internet. Learn more about the #youngcarer experience in our Spotlight on Ontario's Caregivers report: bit.ly/2XHBnuu pic.twitter.com/b23RhRz5VB

Tomorrow @C_Haanstra, @Micaela_Harley and Jo-Anne Sidorchuk will be at the #Frayme2020 Learning Institute speaking to the #youngcarers work underway at The Change Foundation and within the Embrace @CaregiversSDG #ChangingCARE project. Be sure to find them and say hello! pic.twitter.com/TsLu6wx9pY

The #Hidden exhibit and our new #podcast 'Hidden: The Voices of Young Carers' go hand-in-hand and allow you to learn about #youngcarers. Find time to visit the exhibition featuring photos by @MaxA_Photo and listen to the podcast: bit.ly/36yRH4F pic.twitter.com/HkeJQiNGB9

How do caregivers feel about caregiving? What do caregivers wish for? Additional insights on what it is like being a #caregiver are available in the 2019 Spotlight on Ontario’s Caregivers report: bit.ly/2QOu1RG pic.twitter.com/n1fM2mn1A7

On #YoungCarersAwarenessDay in January, we launched a new #podcast series. Subscribe to "Hidden: The Voices of #YoungCarers on your podcast platforms or access the links on our webiste. Don't forget to rate & review! bit.ly/36yRH4F pic.twitter.com/JbsxStONhP

Hi new followers. Thanks for joining us! @TanyaTewari2 @ruthzowdu @KnottyKLK @SilenceNotGold @ArifJetha @DrKhan_do @AniSpooner @DanJMulder1 @LAKosziwka @MarthaMcG @SaamiyahAli Subscribe to our newsletter, Top of Mind, to stay informed on our work bit.ly/2H3wXZw pic.twitter.com/wG7BTxNxuy

“I wish I had gotten a package, I wish they had told me all these things – where to find things, where to wait, where to park, where to find my husband after his operation” – Carole Ann, Family Caregiver Hear from other #caregivers in our Wishlist videos: bit.ly/2tb3KDK pic.twitter.com/05uzOQXgBv

In our recent blog 'How we applied an equity lens to our #caregiver engagement' we share our guiding principles which served to ground our work. And by reflecting on our journey so far, we share our learnings, observations and reflections. Read the blog: bit.ly/3bVrTTX pic.twitter.com/S9IZ8Lhvdj

The Change Foundation’s Journey into the World of Patient Experience

WHAT’S BEING SAID