The Change Foundation’s Journey into the World of Patient Experience

Download Journey into the World of Patient Experience

In The Change Foundation’s Journey Into the World of Patient Experience, CEO Cathy Fooks provides high-level reflections on our 2010–2013 strategic journey, focusing on the lived experiences of patients and caregivers to drive system change. She says, “We decided we’d better listen to patients – maybe it would change how we saw the world of Ontario healthcare. We did listen. And it did.”

Our 2011 Loud and Clear consultations crystallized the difficulties seniors with chronic conditions have encountered in navigating the system. Fooks’s reflections outline how those consultations and subsequent research, policy analysis and patient engagement work led us to develop two signature projects, launched in 2012: Northumberland PATH and PANORAMA.

Tagged in: patient experience, Ontario health, patient engagement, Cathy Fooks, PANORAMA, PATH

All three hospitals in our first case studies report understood the power of stories to unite patients, families and professionals & remind them of the reasons they want to improve care. Learn more about the hospitals profiled in the case studies: bit.ly/2Stemsl pic.twitter.com/qXkJiPW1ep

What were some of the roadblocks faced by the three hospitals in our first case studies report? Review the report and learn more about @MountSinai, @HBKidsHospital and @CHEOhospital: bit.ly/2Stemsl pic.twitter.com/SwkjoWyx5I

Stephane is a young caregiver who assists with caring for his younger brother. Don has been caring for his wife since her diagnosis with early onset Alzheimer’s 5 years ago. Hear from Stephane & Don on what their #caregiving experiences have been like: bit.ly/2BwoATh pic.twitter.com/HGtzE4K3p0

In our first case studies report, we discovered that one shared feature of each hospital’s journey was a realization that listening to and valuing the voices of patients and families improves healthcare. Download your copy of the report here: bit.ly/2Stemsl pic.twitter.com/gBNlvC5rol

Our 2018 Spotlight on Ontario’s Caregivers survey heard from 71 #youngcarers. Find out what they had to say about their experiences as #caregivers: bit.ly/2zRU6Jf pic.twitter.com/N2oFYgY3zJ

How does @HBKidsHospital maintain some of the highest standards for patient and family engagement in the country? Find out in our first case studies report: bit.ly/2Stemsl #patientengagement pic.twitter.com/CJKOQGLRlz

One in ten caregivers spend so much time caring, they can’t estimate the hours. Our 2018 Spotlight on Ontario’s Caregivers report provides a fuller picture on the caregiving experience: bit.ly/2zRU6Jf pic.twitter.com/iVEXV3h15j

15% of #caregivers surveyed postponed enrolling in an education or training program because of their caregiving duties. Learn more about the impacts of caregiving in our latest report: bit.ly/2zRU6Jf pic.twitter.com/eBsvNqDUyf

Do #caregivers get enough information and support when it comes to providing physical assistance to the care receiver? Learn what survey respondents said and create your own data visualizations: bit.ly/2QuSb7O pic.twitter.com/VXQkQbx3a9

The @MountSinai model of care in its Neonatal Intensive Care Unit is being looked at and adopted by hospitals in many countries, including China, the U.S.A. and Britain. Learn more about Mount Sinai’s model of care here: bit.ly/2Stemsl pic.twitter.com/QOH5boWKip

The Change Foundation’s Journey into the World of Patient Experience

WHAT’S BEING SAID