The Change Foundation’s Journey into the World of Patient Experience

Download Journey into the World of Patient Experience

In The Change Foundation’s Journey Into the World of Patient Experience, CEO Cathy Fooks provides high-level reflections on our 2010–2013 strategic journey, focusing on the lived experiences of patients and caregivers to drive system change. She says, “We decided we’d better listen to patients – maybe it would change how we saw the world of Ontario healthcare. We did listen. And it did.”

Our 2011 Loud and Clear consultations crystallized the difficulties seniors with chronic conditions have encountered in navigating the system. Fooks’s reflections outline how those consultations and subsequent research, policy analysis and patient engagement work led us to develop two signature projects, launched in 2012: Northumberland PATH and PANORAMA.

Tagged in: patient experience, Ontario health, patient engagement, Cathy Fooks, PANORAMA, PATH

In our recently launched toolkit are resources the Embrace @CaregiversSDG #ChangingCARE team created to support the healthcare providers by recognizing, listening to & considering young carers as valuable members of the care team: bit.ly/2EMZJw3 #youngcarers #caregivers pic.twitter.com/DFUuxU4JXv

Caregiver profile. Meet @fitsumareguy former young carer. He took on a supporting role at a young age because his Ethiopian/Eritrean refugee parents “struggled to adjust to life in Canada.” #caregiver #youngcarer Hear his caregiver story: bit.ly/2G9WTSR

Hear from participants who were interviewed on what changed for them as family presence and open visiting hours were implemented across hospitals? Read what they have to say: bit.ly/2Wuto3q pic.twitter.com/UfS6HcJ5vo

64% of caregivers who needed information on providing physical support received it. Our Spotlight on Ontario’s Caregivers report provides a fuller picture on the caregiving experience: bit.ly/2zRU6Jf pic.twitter.com/bayAE25id0

We created an online toolkit to share our resources, tools and learnings in an effort to help others learn from our experience with #codesign and caregivers. If you are starting the conversation for #caregiver involvement check out this toolkit: bit.ly/2tbWk3q pic.twitter.com/oT2aufiiOb

22% of caregivers have faced financial hardship due to caregiving. Our Spotlight on Ontario’s Caregivers report provides a fuller picture on the caregiving experience: bit.ly/2zRU6Jf pic.twitter.com/3FGHxP9Hbs

We held a workshop of 16 caregivers – 2 of which were #youngcarers. Watch The Caregiver Wishlist video to hear from them: bit.ly/2pQwtfo pic.twitter.com/KRbSyLXYdI

#Youngcarers are children or youth who are helping to care for a sibling, a parent or a grandparent - it’s estimated that approximately 17% of Ontario caregivers are youth. Learn more about Ontario #caregivers: bit.ly/2XHBnuu pic.twitter.com/LzLAhVjpz7

Carole Ann has been the primary caregiver for her husband since complications from surgery caused his health to significantly deteriorate. Carole Ann is now using her experience to advocate for more information & resources for #caregivers across Ontario. bit.ly/2HYMBXo pic.twitter.com/r1ezWdVTUK

Caregiver profile: This is Alissa. Young carer Alissa answers the question: How do you cope with being a young carer? bit.ly/2CAm3Ym #youngcarer #ONhealth

The Change Foundation’s Journey into the World of Patient Experience

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