The Change Foundation has worked with family caregivers since 2015 to understand what it is like to be a caregiver. During that time, we have undertaken a variety of initiatives to improve the caregiver experience with Ontario’s healthcare system, including the Changing CARE projects and our work with young carers.
In this toolkit, we’ve packaged together all the tools, resources, reports and learnings we’ve put out along the way, in an effort to help others learn from our experience with co-design and caregivers. We will keep this page updated as our work, and learnings, progress.
Regardless of where your organization is in terms of caregiver involvement – building the case, starting the conversation, ready to implement or evaluating the impact – we’re confident there’s something in this toolkit to help you out.
Where do #caregivers go for information and supports? We gained insights from our survey with 800 caregivers for the Spotlight on Ontario's Caregivers however we wanted to hear from our Caregiver Advisory Panel members as well. Check out what they said: bit.ly/2KJpOOmpic.twitter.com/WJG3ehZI0X
'Understanding Your Care Team' has been co-developed with #caregivers to help caregivers & patients understand the various types of providers that may be on their care team & their respective roles. Using plain language, each role is defined. Check it out: bit.ly/2S8QueGpic.twitter.com/ISgr1iYet1
Meet Apoorva. Apoorva takes care of her husband Abhishek, who has dementia. In this video, she discusses her caregiver journey and the importance of seeking help when struggling in the role of #caregiver. Listen to her story: bit.ly/2UDvEnW
The Caregiver Friendly Framework recognizes the many facets of supports & resources a caregiver may need to feel visible, included, encouraged, respected, supported & comfortable in their role. Access the framework for you to adopt in your organization: bit.ly/2VUALRdpic.twitter.com/PDdWAHtKsR
Developed by the Connecting the Dots #ChangingCARE team and co-designed by providers and caregivers, the Time to Talk toolkit is a self-recognition and support tool that aims to facilitate awareness of caregivers. Access the Time to Talk toolkit resources: bit.ly/2C4ukDApic.twitter.com/9FhEu4EWbR
Planning a co-design workshop? Access a variety of resources created by the #ChangingCARE teams to include caregivers in project planning & facilitate workshops. Materials include guides for facilitators, evaluation forms, sample agendas & activities: bit.ly/2H0VY8opic.twitter.com/IAMWs2xfKQ