Building the Case

This toolkit houses the resources and tools we – and the Changing CARE teams – have created to help you build the case for co-design and improving the caregiver experience in your organization.

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Stories Shared, Voices Heard: Ontario’s Family Caregivers

When we launched our strategic plan Out of the Shadows and Into the Circle, bringing a new focus to the role of family caregivers in the health care system, we wanted to listen and learn from family caregivers as well as frontline health care providers. To do that effectively, we created The Caring Experience project.

Stories Shared, Voices Heard: Ontario’s Healthcare Providers

When we launched our strategic plan Out of the Shadows and Into the Circle, bringing a new focus to the role of family caregivers in the health care system, we wanted to listen and learn from family caregivers as well as frontline health care providers. To do that effectively, we created The Caring Experience project.

Out of the Shadows and Into the Circle: From Listening and Learning to Action

In April 2015, The Change Foundation launched our 2015-2020 strategic plan. In that document, we knew that the experience of family caregivers is inextricably linked to the experience of the people they are caring for. However, we knew we needed to know more in order to fully understand the breadth and depth of the family caregiver experience in Ontario.

A Profile of Family Caregivers in Ontario

Over the last decade, health care in Ontario has increasingly become more community- and home-based. However, even though options exist for individuals to manage their own care at home, a family member or friend is also likely acting as caregiver throughout the health care journey.

2015-2020 Strategic Plan

The Change Foundation releases new 5-year strategic plan focused on unrecognized “glue” of our system: family caregivers. “Our health care system is dependent on unpaid caregivers. And the reality is that these caregivers are often not recognized or respected for the role they play. At best, there is an inconsistent approach to family caregivers. In many cases, they are not even considered as key members of the care team.”

Shedding New Light: One Caregiver’s Journey

In March 2015, The Change Foundation formally released Out of the Shadows and Into the Circle, its 2015-2020 strategic plan focused on improving the experiences of family caregivers in the Ontario health care system and their interactions with health providers. The first year of the strategic plan outlined a comprehensive period of research into the existing literature, legislation, and policy documents that currently exist on the stages and experiences attributed to caregiving

Young Carers

More than a quarter of Canada’s youth are young carers. To support young carers, the health system must recognize, listen to, and consider young carers as valuable members of the care team.

Caregiver Wishlist

There are an estimated 3.3 million family caregivers in Ontario – nearly a third of the population – and we know that these numbers are only increasing. As more and more Ontarians become caregivers every day, we wanted to create something to help them on their caregiver journey, and to help the healthcare providers who work with them.

Caregiver Video Library

Caregiver stories are a powerful tool in understanding the caregiver experience, identifying gaps and opportunities for improvement, and supporting co-design efforts.

Resource Hub

As part of our caregiver engagement and research activities, we have developed a collection of legislation, policies, strategies, and organizations directed at family caregivers. These resources provide access for individuals and groups looking to help improve the experience of family caregivers.

WHAT’S BEING SAID

NEW REPORT: The second in our Lessons From #ChangingCARE series, where we talk about what we, and the Changing CARE teams have learned so far as we listen, learn & #codesign with caregivers & providers. This one’s focused on the teams’ co-design events. bit.ly/2Rixfxl pic.twitter.com/6ahYEWTEtJ