Caregivers as Partners is an educational series for providers that helps them improve the experience of family caregivers through practical tips and examples.
Ready to Implement
This toolkit houses the resources and tools we – and the Changing CARE teams – have created to help you implement co-design and caregiver engagement in your organizations.
Co-designed by providers and caregivers, the Time to Talk toolkit is a self-recognition and support tool that aims to facilitate awareness of caregivers – their roles and the value they bring to being on the care team, and encourage meaningful conversations.
The Care Resource binder and the My Healthcare Journey binder have been developed to improve communication among health team members, enhance caregiver involvement and education, and facilitate effective care transitions.
Effective discharge planning involves the family caregiver to ensure they have the supports and education needed for a smooth transition from the hospital to the community.
Understanding Your Care Team has been co-developed with caregivers to help caregivers and patients understand the various types of providers that may be on their care team and their respective roles.
In an effort to universally recognize caregivers, The Change Foundation has developed a logo that can be used across initiatives that focus on caregivers. For example, the logo is being used in conjunction with the Caregiver ID.
Caregivers often provide insightful information that can be helpful for providers in better understanding how the patient is managing and coping with their condition(s). However, Information about and from the caregiver is not easily captured in a standardized manner in electronic medical records (EMRs). To facilitate improvements in provider and caregiver interactions, and enable caregivers a voice on the care team, EMRs can be adapted to ensure relevant conversations are documented in a dedicated space.
Recognizing that families and caregivers are an integral part of the collaborative care team, the Caregiver ID initiative was designed to formally identify caregivers within care settings and facilitate their participation and role as members of the care team.
Organizations looking to engage and improve caregiver experience in their care settings can adopt a caregiver friendly framework and outline the rights of caregivers. Both tools inform staff, providers, patients and caregivers that caregivers are visible, and valuable, members of the care team.
Two of the Changing CARE projects, Embrace and Connecting the Dots, developed local websites to support the education and awareness of programs, services and resources for caregivers and healthcare providers. Both projects used a co-designed approach, working with local caregivers and healthcare providers to develop the websites.
Healthcare organizations can support caregivers and enable them to better cope through developing local resources, such as a calendar of support group events, courses and education; a resource list of services available, publishing regular tips, and producing a series of videos where caregivers offer each other advice.
As part of our caregiver engagement and research activities, we have developed a collection of legislation, policies, strategies, and organizations directed at family caregivers. These resources provide access for individuals and groups looking to help improve the experience of family caregivers.