Our Spotlight on Ontario’s Caregivers report sets out to better understand the experience, profile and needs of family caregivers in Ontario.
Starting the Conversation
This toolkit houses the resources we – and the Changing CARE teams – have created to help you start the conversation about co-design and improving the caregiver experience in your organization.
More than a quarter of Canada’s youth are young carers. To support young carers, the health system must recognize, listen to, and consider young carers as valuable members of the care team.
There are an estimated 3.3 million family caregivers in Ontario – nearly a third of the population – and we know that these numbers are only increasing. As more and more Ontarians become caregivers every day, we wanted to create something to help them on their caregiver journey, and to help the healthcare providers who work with them.
Caregiver stories are a powerful tool in understanding the caregiver experience, identifying gaps and opportunities for improvement, and supporting co-design efforts.
Caregivers as Partners is a series of three education modules that aim to provide practical tips that can be applied in practice to improve the experience of family caregivers, and providers.
As patient engagement activities become more common and compensation is a question, these tools can help answer the question: Should patient and family-caregiver participants be paid?
Now that we’re more than a year into Changing CARE, it’s the ideal time for us to stop and reflect on the collective path we’ve taken so far, and release our learnings on the engagement phase of co-design.
Caregivers and providers both need to understand how Ontario’s privacy and consent rules apply to them so that they can work together to ensure the best care and outcomes for the patient.
The Embrace Discovery Phase Report tells a story of how the project prioritized and launched its five project streams through engaging with caregivers and health providers.
Two of the Changing CARE projects, Embrace and Connecting the Dots, developed local websites to support the education and awareness of programs, services and resources for caregivers and healthcare providers. Both projects used a co-designed approach, working with local caregivers and healthcare providers to develop the websites.
Co-designing with patients, caregivers and healthcare providers is a powerful and insightful approach to developing solutions that will better meet the needs of those the solutions are intended for. The following are examples of resources that were developed by the Changing CARE teams to include caregivers in project planning and facilitate co-design workshops. Materials include guides for facilitators, evaluation forms, sample agendas and activities.
As part of our caregiver engagement and research activities, we have developed a collection of legislation, policies, strategies, and organizations directed at family caregivers. These resources provide access for individuals and groups looking to help improve the experience of family caregivers.